Tuesday, June 30, 2009
I choose to remember the
amazing music & dancing
(back when he looked & acted
a little more normal)
I remember watching MTV to
watch the new videos he did.
The glove, the glitter socks,
the red zippered coat, etc.
Thanks for all the great music & dance.
I wished you could have had a life where
you loved who you were a little more.
Rest in peace.
I've watched her over the years
in tv movies & such,
but I was truly touched when I
watched her special about living with
cancer. I was amazed that she was filmed
without makeup (& was still beautiful)
the kicker was the hair, I was shocked to see
her with no hair, how amazing for others
afflicted with cancer to see her journey.
Thanks for a tear filled eye opening experience.
My husband loves this photo for alot of other reasons,
as did many other teenaged boys.
Known for many things Johnny
Carson's sidekick on the Tonight Show,
host of Star Search, Publisher's clearing house.
Thanks for the smiles.
I'm sorry Billy your dead but......
I really won't miss you yelling at
me to by Oxy clean or whatever.
Monday, June 29, 2009
Sunday, June 28, 2009
My baby is going to away (overnight) camp today! We take her there (it's 2 hrs. away) today! She comes home on Wednesday. Shelby & cousin Lexi Loo Hoo are going together, so I'm sure they'll have a great time. I hope I'm ok :( I'll have pics from camp drop off later today! I'll try not to be a blubbering idiot, wish me luck with that!
Wednesday, June 24, 2009
Tuesday, June 23, 2009
I picked up Shelby from camp yesterday @ 5:00 p.m. I stopped to get her McDonald's for supper before the game. When I got there she had been laying on the couch crying with a bad headache. She had a baseball game @ 5:30, & I was supposed to go back to work to finish up the marrowthon. So we changed all those plans, she was feeling so bad she didn't even want McDonald's (now that's sick) We went home went to the basement & she slept on me for over an hour (we woke her up!) She ate some crackers & chicken noodle soup & went back to bed. She seemed ok this morning, Daren & I both told her to drink lots of water today. I also told her if she feels that bad to have them call me, & I'll come get her! (She didn't call me yesterday because she knew I was doing the marrowthon, sweet baby) The marrowthon yesterday, we had 29 register here @ work, were not sure of the internet sign ups, when I find out I'll let everyone know, thanks for the support.
Saturday, June 20, 2009
Nana Sue & Shelby. Shelby graduated from a week at Camp Freeze (Ice Skating camp) I said "Shelby did you love Camp Freeze?" She said "Mama I LOVED it (with hand dramatically placed on her chest with a long sigh) It was awesome!
Thanks for coming to watch Nana, Shelby & I appreciated it!
Thursday, June 18, 2009
Dear Friends & Family:
Have you ever wondered what it would be like to save someone’s life? On behalf of Midland Information Resources, I’m pleased to offer you a chance to find out.Every day, thousands of patients like Janet Glass’s daughter, Ashlyn, are searching for a life-saving donor – someone like you. You can help save a life by being part of the nationwide Be The Match Marrowthon campaign, taking place on June 22. Be The Match, the new name for the National Marrow Donor Program, helps patients with leukemia and other life-threatening diseases in need of a marrow transplant. The Marrowthon aims to add 46,000 new members to the Be The Match Registry. The registration fee will be covered by generous sponsors until this goal is met, so now is the time to join! Join the Be The Match Registry: Though millions have joined the registry, there are still not enough donors to meet the needs of all patients. We need your help! Donors must be between the ages of 18 and 60. Joining the registry is easy – take the first step at BeTheMatch.org/Marrowthon. When asked to provide a “Promo Code”, please enter 032400189. Fund hope for the future: To kick off the campaign, the Jeff Gordon Foundation is generously donating $300,000 to help grow the registry. While the cost of joining the registry is being donated during this Marrowthon, adding a new member to the registry costs approximately $100. For those who are able, a donation of $52 to cover the cost of tissue typing would be appreciated. You may give online at BeTheMatch.org/Marrowthon. Spread the word: Tell your family and friends about the critical need for more donors on the registry and encourage them to join online here in the Midland Lunchroom on Monday, June 22. Computers will be set up to register for the program from 8:00 a.m. to 4:30 p.m. Please enter at the main lobby entrance. You can help save a life. Do it because you care. Do it because you can. Thank you. Sincerely, Midland Information Resources 5440 Corporate Park Drive (Near Showcase Cinemas 53 and Border’s Bookstore) Davenport, Iowa 563-359-3696 (Ask for Maggie or Trish)
This is a story about a wonderful young lady named Ashlyn. She and many others across the country are in desparate need of a bone marrow transplant. This is her story, and after the story, I will tell you how you can get involved and help.
Ashlyn Glass has always been a healthy child. She has always been active, her love is dancing which consumes many hours a week. So when we started seeing red dots on the lower half of her legs we thought it was razor burn or maybe an infection due to her dance tights.
When the dots weren’t fading away as they had in the past, and in fact were getting worse, it was time to see a doctor. Our family doctor immediately ran blood work which showed that her platelets were down to 25,000. Platelets for a normal teenage girl should be around 140,000 at their lowest. Our doctor put us in contact with a hematologist who immediately took a bone marrow sample and a bone biopsy that same day.
Thankfully the biopsy eliminated the fear that this could be leukemia, but opened up the door to a number of other possible diseases. A week later, and after Ashlyn’s first platelet transfusion, she was diagnosed with Aplastic Anemia, a rare and serious disease that can happen at any age, but is more common in younger people. Ashlyn is just 14, a freshman in high school.
Aplastic Anemia is a condition where your immune system has gone haywire and your bone marrow stops producing enough new blood cells. Because of this disease, Ashlyn cannot participate in dance, can’t ride her bike, go to water parks, and has a higher risk of getting an infection -- which can be life threatening.
The cure for this disease is a bone marrow or cord marrow transplant. Her immediate family members are not a match, so she must turn to the alternative Immunosuppressant drugs. Some patients have shown signs that the disease will go into remission after one or two rounds of treatment, but many times this fails and the only possibility is a bone marrow transplant.
While Ashlyn waits her first round of treatment we “maintain” with platelet or whole blood transfusions which only last about a week. We hope that the treatment will work for her, if not we pray that there is a match in the National Bone Marrow Registry so our little girl can continue on with her life.
Sunday, June 14, 2009
My dance buddy Kim (also known as Kenzie's Mom) and I
Kenzie & Shelby (they're both going in to second grade crazy huh?)
Ok yesterday as I said did not go well! Today was much better, I smiled as much as I could, & remembered the eye part (just go with me I know you have o idea what I'm talking about) I felt good about today. I'm done dancing for quite awhile, it was fun, challenging, nerve racking I'm glad I did it, it's good to do things that scare you omce in awhile!!!
Yesterday was MY recital oh yeah & Shelby's :) I have been fretting about this recital for mths. I screwed up several times, thought I was going to puke or pass out. First we did tap, then we go off stage & switch into our jazz shoes, Denise (the girl who stands by me) & I got our shoes mixed up, I had 2 right shoes, she had 2 left (by the way she wears a 9 I wear a 10) So it's over, I'm hoping today goes better, it has to get better, yikes! Thanks for the flowers Momma. Thanks for the support & prayers from everyone. A special thanks to my daughter who always says Mama you did great! Most of all to my best friend & husband Daren. He always says you can do it, I know you can. When I screwed up he rubbed my knee & said you did great job, I said but I screwed up a couple times & told him about the shoe mixup. He said something like it's ok you did great. Then we watched some more dancing & he leans over & says I'm so proud of you. He out of anyone knows this is as far out of my comfort zone as you can get. Even though I screwed up I'm still proud of myself for getting out there & trying. Today is it, I'll write & let you know how it goes!!!!
This is tap rehersal.
Shelby was having a bad day today, it had been a super long week for us, so by Friday it was melt down time. During tumbling rehersal a girl she does a tumbling move with hit her knee on Shelby's head which normally would not be that big of deal turned ugly, oh well we all have bad days.